Publication Author: Patrick_Donald

• Development and validation of the Crohn’s disease patient-reported outcomes signs and symptoms (CD-PRO/SS) diary.

  Higgins PDR, Harding G, Leidy NK, DeBusk K, Patrick DL, Viswanathan HN, Fitzgerald K, Donelson SM, Cyrille M, Ortmeier BG, Wilson H, Revicki DA, Globe G. Development and validation of the Crohn’s disease patient-reported outcomes signs and symptoms (CD-PR

  rakerr2

  May 9, 2018

• COSMIN guideline for systematic reviews of patient-reported outcome measures.

  Prinsen CAC, Mokkink LB, Bouter LM, Alonso J, Patrick DL, de Vet HCW, Terwee CB. COSMIN guideline for systematic reviews of patient-reported outcome measures. Qual Life Res. 2018 Feb 12. doi: 10.1007/s11136-018-1798-3. [Epub ahead of print]

  rakerr2

  May 1, 2018

• COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study.

  Terwee CB, Prinsen CAC, Chiarotto A, Westerman MJ, Patrick DL, Alonso J, Bouter LM, de Vet HCW, Mokkink LB. COSMIN methodology for evaluating the content validity of patient-reported outcome measures: a Delphi study. Qual Life Res. 2018 May;27(5):1159-117

  rakerr2

  May 1, 2018

• Development of the Weight-Related Sign and Symptom Measure.

  Brod M, Højbjerre L, Pfeiffer KM, Sayner R, Meincke HH, Patrick DL. Development of the Weight-Related Sign and Symptom Measure. J Patient Rep Outcomes. 2017;2(1):17. doi: 10.1186/s41687-018-0042-9. Epub 2018 Apr 2.

  rakerr2

  April 2, 2018

• Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures.

  Acquadro C, Patrick DL, Eremenco S, Martin ML, Kuliś D, Correia H, Conway K; International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG). Emerging good practices for Translatability Asse

  rakerr2

  February 21, 2018

• Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension.

  Calvert M, Kyte D, Mercieca-Bebber R, Slade A, Chan AW, King MT; the SPIRIT-PRO Group, Hunn A, Bottomley A, Regnault A, Chan AW, Ells C, O’Connor D, Revicki D, Patrick D, Altman D, Basch E, Velikova G, Price G, Draper H, Blazeby J, Scott J, Coast J, Norqu

  rakerr2

  February 6, 2018

• Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years.

  Edwards TC, Emerson J, Genatossio A, McNamara S, Goss C, Patrick DL, Onchiri F, Rosenfeld M. Initial development and pilot testing of observer-reported outcomes (ObsROs) for children with cystic fibrosis ages 0-11years. J Cyst Fibros. 2018 Sep;17(5):680-6

  rakerr2

  February 1, 2018

• Prioritizing research topics: a comparison of crowdsourcing and patient registry.

  Truitt AR, Monsell SE, Avins AL, Nerenz DR, Lawrence SO, Bauer Z, Comstock BA, Edwards TC, Patrick DL, Jarvik JG, Lavallee DC. Prioritizing research topics: a comparison of crowdsourcing and patient registry. Qual Life Res. 2018 Jan;27(1):41-50. doi: 10.1

  rakerr2

  January 1, 2018

• Subgrouping and TargetEd Exercise pRogrammes for knee and hip OsteoArthritis (STEER OA): a systematic review update and individual participant data meta-analysis protocol.

  Holden MA, Burke DL, Runhaar J, van Der Windt D, Riley RD, Dziedzic K, Legha A, Evans AL, Abbott JH, Baker K, Brown J, Bennell KL, Bossen D, Brosseau L, Chaipinyo K, Christensen R, Cochrane T, de Rooij M, Doherty M, French HP, Hickson S, Hinman RS, Hopman

  rakerr2

  December 22, 2017

• COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures.

  Mokkink LB, de Vet HCW, Prinsen CAC, Patrick DL, Alonso J, Bouter LM, Terwee CB. COSMIN Risk of Bias checklist for systematic reviews of Patient-Reported Outcome Measures. Qual Life Res. 2018 May;27(5):1171-1179. doi: 10.1007/s11136-017-1765-4. Epub 2017

  rakerr2

  December 19, 2017