Publication Author: West_Kathleen

• Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants.

  West KM, Cavanaugh KL, Blacksher E, Fullerton SM, Umeukeje EM, Young B, Burke W. Stakeholder Perspectives on Returning Nonactionable Apolipoprotein L1 (APOL1) Genetic Results to African American Research Participants. J Empir Res Hum Res Ethics. 2022 Feb-

  rakerr2

  February 1, 2022

• Experience With Advance Care Planning Discussions Among Pregnant Women With Congenital Heart Disease.

  Steiner JM, West KM, Bayley E, Pechan J, Albright C, Buber J, Engelberg RA. Experience With Advance Care Planning Discussions Among Pregnant Women With Congenital Heart Disease. J Pain Symptom Manage. 2021 Sep;62(3):587-592. doi: 10.1016/j.jpainsymman.202

  rakerr2

  February 6, 2021

• Organizational readiness to implement population-based screening and genetic service delivery for hereditary cancer prevention and control.

  Knerr S, West KM, Angelo FA. Organizational readiness to implement population-based screening and genetic service delivery for hereditary cancer prevention and control. J Genet Couns. 2020 Oct;29(5):867-876. doi: 10.1002/jgc4.1216. Epub 2020 Jan 22.

  rakerr2

  October 1, 2020

• Preimplantation Genetic Testing for Genetic Kidney Disease: Addressing Moral Uncertainties and Access Inequity.

  Burke W, West KM. Preimplantation Genetic Testing for Genetic Kidney Disease: Addressing Moral Uncertainties and Access Inequity. Clin J Am Soc Nephrol. 2020 Sep 7;15(9):1231-1233. doi: 10.2215/CJN.11790720. Epub 2020 Aug 27.

  rakerr2

  August 27, 2020

• At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants.

  West KM, Blacksher E, Cavanaugh KL, Fullerton SM, Umeukeje EM, Young BA, Burke W. At the Research-Clinical Interface: Returning Individual Genetic Results to Research Participants. Clin J Am Soc Nephrol. 2020 Aug 7;15(8):1181-1189. doi: 10.2215/CJN.096708

  rakerr2

  February 10, 2020

• Apolipoprotein L1 Testing in African Americans: Involving the Community in Policy Discussions.

  Young BA, Blacksher E, Cavanaugh KL, Freedman BI, Fullerton SM, Kopp JB, Umeukeje EM, West KM, Wilson JG, Burke W; APOL1 Stakeholders Project. Apolipoprotein L1 Testing in African Americans: Involving the Community in Policy Discussions. Am J Nephrol. 201

  rakerr2

  September 3, 2019

• Responsible Research With Urban American Indians and Alaska Natives.

  James RD, West KM, Claw KG, EchoHawk A, Dodge L, Dominguez A, Taualii M, Forquera R, Thummel K, Burke W. Responsible Research With Urban American Indians and Alaska Natives. Am J Public Health. 2018 Dec;108(12):1613-1616. doi: 10.2105/AJPH.2018.304708. Ep

  rakerr2

  December 1, 2018

• Clinician-Stakeholders’ Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results.

  Korngiebel DM, West KM, Burke W. Clinician-Stakeholders’ Perspectives on Using Patient Portals to Return Lynch Syndrome Screening Results. J Genet Couns. 2018 Apr;27(2):349-357. doi: 10.1007/s10897-017-0179-3. Epub 2017 Nov 21.

  rakerr2

  November 21, 2017

• Identifying “ownership” through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch syndrome.

  West KM, Burke W, Korngiebel DM. Identifying “ownership” through role descriptions to support implementing universal colorectal cancer tumor screening for Lynch syndrome. Genet Med. 2017 Nov;19(11):1236-1244. doi: 10.1038/gim.2017.39. Epub 2017 May 4.

  rakerr2

  May 4, 2017

• Found in translation: Decoding local understandings of genetics and heredity in a Yup’ik Eskimo community.

  West KM, Hopkins SE, Hopper KJ, Mohatt GV, Boyer BB. Found in translation: Decoding local understandings of genetics and heredity in a Yup’ik Eskimo community. Public Underst Sci. 2013 Jan;22(1):80-90. doi: 10.1177/0963662510397224. Epub 2011 Mar 14.

  rakerr2

  January 1, 2013